15 March 2022
Global Data Hub – 3 of 17 Insights
Global Data Hub: Health data – getting the right balance between innovation and data protection
Personal health data attracts special protection but also benefits from exemptions under UK and EU data protection law. Have legislators and regulators got the balance between innovation and privacy right or do the rules overly restrict advances in healthcare provision and research? We look at some of the particular issues involved in processing health data - not least in identifying what it is and how it can be used. We focus on data transfers, cybersecurity and fair and lawful processing, as well as looking at guidance and proposals which aim to clarify existing law, and possibly revise or add to it in the near future.
Defining and using health data
Victoria Hordern looks at what constitutes health data and the lawful bases on which it can be processed under the (UK) GDPR.
Why isn't transferring health data across borders for research purposes easier?
Victoria Hordern looks at the restrictions on exporting health data and at whether they are really proportional given that potential benefits could well outweigh any risk.
Fairness and lawfulness in the context of health data
Ed Hadcock looks at the importance of fair and lawful processing of health data to establish trust as well as data protection compliance.
More health data, more risk
Jo Joyce looks at cybersecurity challenges facing health data and at ways to manage risk.
Diagnosed by big data
Victoria Hordern looks at the use of big data and AI in medical diagnostics in the context of data protection and AI regulation.
UK data protection law – a barrier or the key to unlocking health data for scientific research?
Debbie Heywood looks at the scientific research provisions in the UK GDPR and Data Protection Act 2018, in the context of health data.
EU cross-border health data spaces – where are we now?
Elisa-Marlen Eschborn looks at the opportunities created by the planned European Health Data Space, and at whether they can be realised by 2025.
ICO publishes draft guidance on research provisions in the UK GDPR and DPA 18
The ICO seeks to clarify the rules when using personal data for research.
In this series
The EU's Whistleblowing Directive: privacy concerns with whistleblower hotlines
Helen Farr looks at the data protection implications of the EU Whistleblowing Directive and whistleblower hotlines more generally.
11 July 2022
by Helen Farr
Pensions dashboards and data sharing
Anna Taylor and Jo Joyce look at the data sharing requirements for the proposed pensions dashboard and resulting data protection considerations.
17 May 2022
by Anna Taylor, Jo Joyce
Global Data Hub: Health data – getting the right balance between innovation and data protection
15 March 2022
by Multiple authors
Global Data Hub - Data protection, freedom of expression, journalism and the media
14 February 2022
by Multiple authors
Global Data Hub: International update – it's not all about GDPR
8 November 2021
Global Data Hub - Data transfers after Schrems II and Brexit transition
9 October 2020
by Multiple authors
Global Data Hub - Data protection by design and default
6 March 2020
by Multiple authors
Related Insights
Horizons and sandboxes: emerging technology and data protection law
EU cross-border health data spaces – where are we now?
Elisa-Marlen Eschborn looks at the opportunities created by the planned European Health Data Space, and at whether they can be realised by 2025.
Defining and using health data
Victoria Hordern looks at what constitutes health data and the lawful bases on which it can be processed under the (UK) GDPR.